價格：免費
檔案大小：115.1 MB
版本需求：需要 iOS 10.0 或以上版本。與 iPhone、iPad 及 iPod touch 相容。
支援語言：俄文, 加泰羅尼亞文, 土耳其文, 希伯來文, 德語, 法文, 波蘭文, 簡體中文, 繁體中文, 羅馬尼亞文, 義大利文, 英語, 荷蘭文, 葡萄牙文, 西班牙文
Sponsored by the National Center for Advancing Translational Sciences and Clinical Center at the National Institutes of Health (NIH), Rare Disease Day at NIH aims to raise awareness about rare diseases, the people they affect, and NIH research collaborations under way to address scientific challenges and to advance new treatments. The goals are to:
● Demonstrate the NIH commitment to helping people with rare diseases through research.
● Highlight NIH-supported rare diseases research and the development of diagnostics and treatments.
● Initiate a mutually beneficial dialogue among public and private researchers, patients, patient advocates, and policymakers.
● Exchange the latest rare diseases information with stakeholders to advance research and therapeutic efforts.
● Put a face on rare diseases by sharing stories of patients, their families, and their communities.
支援平台：iPhone, iPad